Thursday, February 5, 2015

Update

Well it turns out that having two kids does make blogging harder! So sorry for the lack of updates. We are adjusting to life as a family of four! Finn's baby sister Katherine Alice arrived on December 26th at 5:09pm. We are in love!!

She is affectionately known as Baby K around here thanks to Finn who is shaping up to be a very sweet big brother!

She is happy and healthy and we are grateful!! I don't want to say her delivery was "easy" but in comparison, it was much easier than Finn's. They say that is common with the second!! 

Finn was born at 41 weeks, 2 days and weighed 8lbs 12oz. His head was 14.75 inches. Katherine was born at 39 weeks, 3 days (induction) and weighed 7lbs 14oz. Her head was 13.25 inches. I think that made the biggest difference! And of course the head was our biggest concern. Well for now it looks perfect! It is amazing to see the difference in shape when looking at Finn's baby pictures. I really believe his cranio was undiagnosed for a number of months. In the photo below (3 months old) Finn's forehead appears to already show some signs of bossing. This didn't look alarming to me at the time because I had never heard of craniosynostosis but now I can see it.



Since I last wrote, we had our visits to Dr. Williams (plastic surgeon) and Dr. Reisner (neurosuregeon) I would say the neurologist appointment went better than the plastics. Dr. Reisner saw no signs of pressure in Finn's skull. Phew! And he was pleased with his development overall. He was pleased with my report from Finn's teachers also but we are all still on the lookout for any signs of delay. Right now he is mastering the alphabet and numbers and we're not worried! Dr. Reisner said we can plan to see him again in 2 years! 

Dr. Williams on the other hand we will still see yearly. He has a few holes in his skull that haven't filled in since surgery. Dr. Williams prepared us for the possibility of another surgery down the road to fill these in. (Around age 4 or 5.) It is much less invasive than a CVR but scary nonetheless. Dr. Reisner didn't necessarily think a second surgery was eminent. He has faith that time will do its job. So, I guess time will tell. We also expressed some concern about Finn's forehead. I am still concerned with its appearance. Obviously I am super critical and want it to be perfect since we put him through a major surgery! I just can't tell if I am being overly critical or not.

Here is a picture from last week. Again, its a bath tub shot since it's most visible when his hair is went or pulled pack. You can see he still has a very prominent forehead. Thank goodness for that hair!


Dr. Williams and Dr. Reisner advised us not to worry since there are still a lot of factors at play as he grows. This isn't necessarily what he'll look like for the rest of his life.  So the long story short is - we will watch him closely over the year(s) and call the neuro with any concerns. And then at age 4 or 5 he will have another CT scan to see what the skull truly looks like under all that hair! 

For now, we'll just enjoy our little blessings and the chaos of two kids.... three if you count this guy.


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