Tuesday, September 23, 2014

Almost a year ago...

My mind has been all over the place this week but I keep coming back to one thought... where we were a year ago. It was this week last year that Finn was officially diagnosed. We saw neurosurgeons, plastic surgeons, nurses, pediatricians, ultrasound technicians. I felt like I lived at CHOA and was becoming a sponge for all things cranio. I will hear songs on the radio that came out last September and it will take me back to those short but yet eternal drives to Scottish Rite.

Now here I am zipping him to and from school 3 days a week, listening to him say a new word every day and planning his 2nd birthday. He has amazed me with his strength this past year. He is also smart, funny and sweet as can be. He truly makes my day better and puts a smile on my face when nothing else will. You would think there is nothing to worry about. But the thought of returning to all of these doctors for his one year post-op visits still gives me anxiety. All of the same concerns are still there that were 6 months ago. Is his skull healing? Is his head shape what the doctors had hoped it would be? Did they over-correct or under-correct? Will he need another surgery?

He is scheduled to see his plastic surgeon on November 20th and his neurologist on December 10th. I will be sure to update after those visits. His official cranioversary is Wednesday, November 12th and, as luck may have it, school is closed that day! We'll have to plan something special and fun that day!

As for baby # 2! She is growing bigger by the day and we are all very anxious to meet HER! That's right - Finn is getting a baby sister! Our 20 week appointment with the perinatalogist could not have gone better. Things all appear to be fine and "her head is perfectly egg shaped" according to the doctor. I will have another sonogram at 28 weeks to make sure things are still looking good. But we are blessed that she is appears to be healthy and that there are no causes for concern yet!